Thursday January 18th 2018

Opinion: MS patients can’t wait for study, trial

Re: “Study to track liberation treatment for MS patients,” The Journal, July 28, and Obituaries, The Journal, Aug. 7.

On Sunday, as I scanned the obituaries in The Journal, I came upon the death of another young person who has succumbed to multiple sclerosis.

Yes, people whose MS progresses at a rapid rate die from this horrible disease. And, yes, there are only about 12,000 people affected by MS in our province. But if you are one of those victims or a member of their families, you want to do everything possible to alleviate symptoms.

I am the mother of a son who has MS. The only treatment currently available that shows any promise of eliminating some or all of the symptoms is the liberation treatment.

It is appalling our government is willing to waste $1 million for an online study involving individuals who have received the treatment at their own expense to “give a description of what’s happening.”

There is a better way to determine these results and that is after care.

To determine why some individuals do well, some do not so well and some show no sign of improvement, offer Doppler ultrasound performed by trained interventional radiologists who can determine if blood flow is still being affected.

Oral blood thinners which are normally prescribed after treatment are rarely able to dissolve existing clots, which can lead to permanent vein occlusion.

The earlier treatment is performed the better the outcome. Patients can visit their neurologist twice yearly and accurate data of their progress or lack thereof can be documented. Everyone benefits, the patient has followup care and is not discriminated against and the government receives the information it requires to ensure the feasibility and benefits of the liberation treatment. No need to worry about inaccurate data.

It has already been determined the treatment itself is minimally invasive and relatively safe, with 15,000 plus patients worldwide having had the procedure in the past 20 months. Perhaps as with arteries this is not a one-time procedure for some.

If this was your child, your spouse, your parent, your sibling, your grandparent, or your best friend whom you love dearly, would you want to watch their disabilities worsen or perhaps watch them die while waiting for a two-or threeyear study, then another two or three years for a trial?

It is up to the public to help change our government’s agenda, as 12,000 MS victims do not seem able to make a difference.

Grace Davidson, Sherwood Park

Read More

Leave a Comment

More from category

‘Give MS research a chance’
‘Give MS research a chance’

A Wagga woman living with multiple sclerosis has slammed the churches and government for preventing a radical MS [Read More]

MS sufferer turning to street dealers for drugs
MS sufferer turning to street dealers for drugs

A GRANDMOTHER from Abingdon says she has resorted to buying drugs from street dealers to tackle the pain she suffers [Read More]

New study fuels debate about benefits of vitamin D
New study fuels debate about benefits of vitamin D

Is the vitamin D miracle just a hoax? Many scientific experts are asking that question as the number of studies casting [Read More]

Can You Exercise Your MS Fatigue Away?
Can You Exercise Your MS Fatigue Away?

It wasn’t that many years ago that people diagnosed with MS were told not to exercise. Researchers, clinicians and [Read More]

Few more hurdles and MS patients in France will have Sativex
Few more hurdles and MS patients in France will have Sativex

The French government announced the approval of limited use of Sativex, a mouth spray based on the THC that is found in [Read More]